Thursday, 21 June 2012

Motor Neurone Disease

Today is Motor Neurone Disease Global Day. Motor neurone disease is the name given to a group of diseases in which the muscles gradually weaken and waste away. One by one, people lose the ability to walk, talk and then to swallow. 

This disease has no known cause, no known cure and no effective treatment. It is estimated there are about 1,400 people Australians who have been diagnosed with MND.

Today I would like to pay tribute to one of these people. His name is Scott Sullivan. I met Scott just a few weeks ago. Scott, his wife Sarah, and their two young children Abbey and Charlie, live in Coorparoo in my local community in Brisbane.

In 2010, Scott who is a very young man was diagnosed with motor neurone disease. He told me his life expectancy is between three and five years. He is a strong man and resolute. Shortly after his diagnosis, Scott helped launch the MND and Me Foundation. A few months back he was awarded the Pride of Australia Courage Medal for Queensland for his efforts. 

The MND and Me Foundation is a not-for-profit organisation that raises funds for research into finding a cure and provides practical support to ensure that those who live with this terrible disease and their families are properly looked after. 

I urge all honourable members and the entire Australian community to show your support for organisations like the MND and Me Foundation. Let us try to beat this insidious disease.


  1. Thank you Mr Rudd. As the daughter of an MND sufferer, I would like to extend my gratitude to you for helping to raise awareness of MND and highlighting the need for the Australian community to show their support.

    I do as much as I can in my local community here in the ACT to raise awareness but the profile of this terrible disease needs to be raised and deserves far more media coverage.

    Thank you once again.

  2. My father passed away in 2003 from MND. Thank you, Mr Rudd, for helping to raise awareness. On behalf of all the sufferers, carers and health care workers, thank you so much your kind words. Keep it up.

  3. Thank you for raising awareness of this terrible disease

  4. My brother a scientist well known in his field of climate change in NZ passed away seven years ago.
    The hardest words to hear from a brother were "My body is wasting away"
    He credited B12 injections with giving him an extra couple of years.